The mayor of the City sent me the proclamation, and a special note for Cameron.
He also let me know that The signed proclamation will be in the Le Sueur newspaper.
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DR Dan Gruenstein
DR James Saint Louis
Sarah Jane Schwarzenberg, MD
DR Danielle C Bennett
♥ click on picture for HLHS Info ♥
"Team Cameron" teddy Bear
Posts
Welcome
Cameron Chase was born October 7th 2009.
At our 21 week level II ultrasound, we learned that our precious baby boy would be born with a severe congenital heart defect, called Hypoplastic Left Heart Syndrome.
Hypoplastic Left Heart Syndrome (HLHS) is a heart defect where the left side of his heart didn't form properly in utero.
Without surgery it is 100% fatel.
There is NO cause for this CHD, and yet it occurs 4 in 10,000 babies.
In order for Cameron Chase to survive he will need to have three heart surgeries.
He has two out of three of the needed surgeries.
The first one was the hybrid norwood, he had that surgery at just 8 days old, and the bi-directional glenn at 6 1/2 months old.
Cameron still needs to have the stage three surgery which is the Fontan, the tentative plan is that he will have this surgery anywhere from the age of 2 to 3 years old.
Cameron's cardiologist Dr Gruenstien has sat us down already and told us that Cameron's heart will become tired and become worn out by the time he reaches his early to mid twenties, making a heart transplant his only option as to of staying alive.
We take everyday one day at a time, and do lots of praying that Cameron will survive and grow up and accomplish many great things in his life.
Please continue to lift Cameron up in your prayers as everyday is a a challange for him.
♥♥ mommy, daddy and big sisters love you so much Cameron, and everyday we have with you is truly a blessing from above.
Stay strong monkey, we will make it thru this with you ♥♥
At our 21 week level II ultrasound, we learned that our precious baby boy would be born with a severe congenital heart defect, called Hypoplastic Left Heart Syndrome.
Hypoplastic Left Heart Syndrome (HLHS) is a heart defect where the left side of his heart didn't form properly in utero.
Without surgery it is 100% fatel.
There is NO cause for this CHD, and yet it occurs 4 in 10,000 babies.
In order for Cameron Chase to survive he will need to have three heart surgeries.
He has two out of three of the needed surgeries.
The first one was the hybrid norwood, he had that surgery at just 8 days old, and the bi-directional glenn at 6 1/2 months old.
Cameron still needs to have the stage three surgery which is the Fontan, the tentative plan is that he will have this surgery anywhere from the age of 2 to 3 years old.
Cameron's cardiologist Dr Gruenstien has sat us down already and told us that Cameron's heart will become tired and become worn out by the time he reaches his early to mid twenties, making a heart transplant his only option as to of staying alive.
We take everyday one day at a time, and do lots of praying that Cameron will survive and grow up and accomplish many great things in his life.
Please continue to lift Cameron up in your prayers as everyday is a a challange for him.
♥♥ mommy, daddy and big sisters love you so much Cameron, and everyday we have with you is truly a blessing from above.
Stay strong monkey, we will make it thru this with you ♥♥
Carmeron's primary Cardiologist
DR Dan Gruenstein
Cameron's surgeon
DR James Saint Louis
Cameron's GI Doctor
Sarah Jane Schwarzenberg, MD
Cameron's Pediatrician
DR Danielle C Bennett
This is what Cameron's heart defect looks like
♥ click on picture for HLHS Info ♥
Blog Archive
About Me
When I Became a Heart Mother
One day my wold
came crashing down
I'll never be the same,
They told me that
my child would be sick .
I thought am to blame?
I don't think I can handle this...
I'm really not that strong,
It seemed my heart
was breaking...
As I loved him for so long
i will not give up on my child
despite your best "advice",
I will give my child a chance...
no matter what the price
and I will learn all that I need...
to help my child thrive
I'll even use a feeding tube...
my child will survive!!
will he require therapy?
what if he can't gain weight?
Alright God, I can do this..
I will not curse our fate.
The feeding tube beeps,
at 3:00 am
It serves as a reminder...
how many parents would
welcome that sound
Tomorrow Lord,
I will be kinder
Another Angel earns
their wings
And I run to my sleeping
child's bed...
I watch him then, for
quite awhile
Bend down and kiss his head
Then I cry for the parents
whose lives have been broken
and I look to God
wondering why?
Oh Lord, I just can't
know your ways...
No matter how much I try
and yet, I trust you to
hold his life,
and guide us through
each day.
my mind says savor each
moment he's here...
but my heart whispers
"please let him stay"
from pacing the surgical room
to sitting by his hospita; bed
from wishing for a good nights
sleep
to learning every med
from wondering will he be alright?
to watching him reach out
his hands
with every smile, my heart just
melts
Despite lifes harsh demands
for all those who see
the faded line
I look to them and smile
You see, my child is
loved so much
I would face any trial
that scar I trace
with my finger
it's a door to his
beautiful heart
I never guessed how
much I'd love him
just as YOU loved him
Right from the start,
A heart mom is
always wise beyond her years
and for those who have
angels in heaven
our hearts share in
all of your tears,
everyday I will strive
to remember
you chose me for him
and no other
and I will embrace
that beautiful day
when I became a Heart Mother.
came crashing down
I'll never be the same,
They told me that
my child would be sick .
I thought am to blame?
I don't think I can handle this...
I'm really not that strong,
It seemed my heart
was breaking...
As I loved him for so long
i will not give up on my child
despite your best "advice",
I will give my child a chance...
no matter what the price
and I will learn all that I need...
to help my child thrive
I'll even use a feeding tube...
my child will survive!!
will he require therapy?
what if he can't gain weight?
Alright God, I can do this..
I will not curse our fate.
The feeding tube beeps,
at 3:00 am
It serves as a reminder...
how many parents would
welcome that sound
Tomorrow Lord,
I will be kinder
Another Angel earns
their wings
And I run to my sleeping
child's bed...
I watch him then, for
quite awhile
Bend down and kiss his head
Then I cry for the parents
whose lives have been broken
and I look to God
wondering why?
Oh Lord, I just can't
know your ways...
No matter how much I try
and yet, I trust you to
hold his life,
and guide us through
each day.
my mind says savor each
moment he's here...
but my heart whispers
"please let him stay"
from pacing the surgical room
to sitting by his hospita; bed
from wishing for a good nights
sleep
to learning every med
from wondering will he be alright?
to watching him reach out
his hands
with every smile, my heart just
melts
Despite lifes harsh demands
for all those who see
the faded line
I look to them and smile
You see, my child is
loved so much
I would face any trial
that scar I trace
with my finger
it's a door to his
beautiful heart
I never guessed how
much I'd love him
just as YOU loved him
Right from the start,
A heart mom is
always wise beyond her years
and for those who have
angels in heaven
our hearts share in
all of your tears,
everyday I will strive
to remember
you chose me for him
and no other
and I will embrace
that beautiful day
when I became a Heart Mother.
Followers
Cameron Chase & Olive Jai
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